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Privacy & Consent
Your privacy and confidentiality is of upmost importance to us. UBC Hospital MS Clinic physician reports will be forwarded to referring physicians and physicians involved in your care.
We do not release information to third parties (such as insurance companies or employers) without your written permission. If you have any questions or concerns, please contact the Vancouver Coastal Health Privacy Office.
What is consent?
We require that you give consent to use your personal health information at the UBC Hospital MS Clinic. There are four basic scenarios (described below) that require your consent. To project your privacy, in most cases, you are required to provide written confirmation of consent.
- Consent for Care
When you come to the clinic with a health concern, consent is implied. Information will be stored in the hospital/clinic records and reports will only be sent to physicians currently or recently involved in your care according to hospital and provincial privacy laws. Consent is implied.
- Consent for Registry (Database)
De-identified data regarding diagnosis and test results are kept in a secure research database. This information is not used for clinical care but is an important tool for collecting statistics and basic summary information on MS and related disorders in British Columbia. The data is looked at from a group level rather than an individual level. Consent is optional and written. Consent can be withdrawn at any time.
- Consent for Specific Research Projects
A variety of voluntary research studies are conducted through the clinic. You may be eligible and interested in those ranging from surveys, MRI research, and clinical trials of new therapies. Each study has a unique consent form that would need to be reviewed and signed before participating in a specific research project. Consent can be withdrawn at any time.
- Consent for Release of Information to Third Parties
To protect your privacy, requests for information such as disability or insurance forms to be released to third parties including lawyers and employers cannot be released without your written consent (signed and dated). There may be a fee for completing these forms.